Your HEAL Data Sharing Checklist

Study progress and Checklist guidanceTrack & View
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Award Received
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Register Your Study on ClinicalTrials.gov (if appropriate)
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Register Your Study With the HEAL Data Platform
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Complete Your Study-Level Metadata (CEDAR) Form
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Report Your Repository Selection via the HEAL Data Platform
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Use HEAL Common Data Elements to Collect Your Data
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Submit Variable-Level Metadata
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Submit Data and Metadata to a Repository
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Report Your Shared Data to the HEAL Data Platform
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Ensure Public Access to HEAL-funded Publications
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Report your Research Publication
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Explore studies, variables, CDEs, and concepts

HEAL Semantic Search 2.1 is Live!

HEAL Semantic Search (HSS) 2.1 is now available, bringing a refreshed interface that makes it easier to explore related studies, variables, Common Data Elements (CDEs), and biomedical concepts from a single search; compare how concepts and variables are defined and measured across studies; and access insights from 20 newly added data dictionaries, over 1000 HEAL studies, and 233 CDEs. Get started today by entering a search term relevant to your research.

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NEW Data Packaging Resource!

Data packaging guidance for HEAL-compliant data sharing

This resource provides guidance and examples to help research teams organize data, metadata, and documentation in ways that support reuse and align with HEAL expectations throughout the research lifecycle

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Submit Your Data Dictionary

Email your data dictionaries to HEALStewards@renci.org

Sharing your data dictionary (metadata that describes your study variables) allows others to discover your study and may help identify potential collaborations and novel research questions. Sharing your study’s metadata also contributes to NIH’s overarching goal of making HEAL data FAIR (Findable, Accessible, Interoperable and Reusable). Click here to learn more about why it is important to share variable information to make your study findable.

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Data Sharing Lifecycle

Data sharing throughout the research data lifecycle

Wondering how to set your study up for successful data sharing from day one? This resource explains what you can do at each stage of the research lifecycle to improve data sharing ease and data reusability. It includes lessons learned across the HEAL Data Ecosystem and supporting resources to help with each step along the way.

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Explore previous HEAL Webinars

Watch HEAL Webinars

Visit our webinar page for slides, summaries, and resources on your topic of interest.