Thu Mar 19 2026 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/P5qBgsvANR4

This webinar showcases NIH HEAL Data Ecosystem (HDE) progress, highlighting how appropriate tools, metadata quality, and advances in scientific commun ...

Tue Feb 03 2026 1:00 PM - 2:00 PM Eastern Standard Time

Collective Board Meeting Summary: HEAL investigators would be interested in knowing about the HEAL data sets that are available and specifically their ...

Thu Jan 15 2026 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: This session was not recorded

Getting started with the HEAL data sharing task early can simplify the data collection and management journey, reduce last-minute stress, and ensure i ...

Thu Oct 16 2025 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/IfoVDOiUqbo

This webinar focused on how research teams can set themselves up for success by planning for data sharing early and throughout their study lifecycle. ...

Tue Oct 07 2025 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The board discussed ideas for further increasing the usability and value proposition of HEAL Semantic Search (HSS). ...

Thu Sep 18 2025 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/Lldw3iy3eWE

Webinar participants see FAIR in action through real-world examples from HEAL investigators who have applied FAIR practices across the research lifecy ...

Tue Sep 02 2025 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The Collective Board found HEAL workspaces to be useful and to accommodate most relevant analytic use cases. FedRAMP ...

Thu Aug 21 2025 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/n4qSMtpeKi8

Building on our previous webinar in May 2025, CDEs Demystified dives deeper into the role of Common Data Elements (CDEs) and variable-level metadata ( ...

Thu Jul 17 2025 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/sVsLPTO1dVU

Effective metadata documentation advances FAIR data practices within the HEAL Data Ecosystem. This webinar provides HEAL investigators and data manage ...

Tue Jun 03 2025 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: Dr. Nora Volkow, NIDA Director expressed it is a key priority to ensure data from HEAL studies is not only deposited ...

Thu May 15 2025 12:00 PM - 1:30 PM Eastern Standard Time

Recording Link: https://youtu.be/qMZXy0VnuVc

HEAL data sharing is most effective when researchers understand expectations across the research lifecycle, from study registration to data submission ...

Thu Apr 17 2025 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/TyCJsldd-rg

Research publications that thoroughly document and describe research methods, the data, and analyses within the publication along with comprehensively ...

Thu Mar 20 2025 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/fqYmmnBNQtA

Effective data packaging critically enables research data structuring, discoverability, and reuse, aligning with the NIH HEAL Initiative’s goals. This ...

Tue Mar 04 2025 1:00 PM - 2:00 PM Eastern Standard Time

Collective Board Meeting Summary: The meeting was used to 1) discuss member feedback on challenges associated with data deposition in more detail, 2) ...

Thu Jan 16 2025 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: No recording available for Office Hours

Make 2025 the year you excel on your HEAL data journey! The HEAL Checklist Status Tracker is your personalized tool to help you navigate the HEAL PI C ...

Thu Nov 21 2024 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/FAYN8gQKb3M

As a HEAL Investigator, we understand there are many data sharing requirements to meet - but don’t worry! The HEAL Data Ecosystem teams (the HEAL Ste ...

Wed Nov 06 2024 11:00 AM - 12:00 PM Eastern Standard Time

Collective Board Meeting Summary: Researchers don’t view data, protocols or code as products of their research, and the barrier to change that entrenc ...

Thu Oct 17 2024 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/GqoeO2_qdrk

As a HEAL Investigator, your study is subject to specific data sharing requirements, but have no fear–we are here to help you understand the nuances o ...

Tue Oct 01 2024 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: Collective Board members were introduced to the NCATS LitCoin project. There was interest in which LLMs were tested ...

Thu Sep 19 2024 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/CEy9fSd3N3c

Are you a HEAL investigator wondering if you’ve chosen the right repository for your data? Join us for our next Fresh FAIR Tutorial to learn the basic ...

Wed Sep 04 2024 10:00 AM - 11:00 AM Eastern Standard Time

Collective Board Meeting Summary: The Platform team presented three HEAL Data Platform use cases. Members proposed an additional use case–researchers ...

Thu Jul 18 2024 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/JvJaWTa-1CU

Are you a HEAL investigator with an award ending soon, or just getting started, and wondering how to get your data ready to share? Join the HEAL Stewa ...

Wed Jul 03 2024 10:00 AM - 11:00 AM Eastern Standard Time

Collective Board Meeting Summary: Two alumni members joined the meeting which focused again on the peer-to-peer thought piece. The proposed timeline t ...

Thu Jun 20 2024 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/GJUy2rmqSOU

Are you a HEAL investigator wondering how to get your study up-to-speed with HEAL data sharing requirements? Are you confused about how the HEAL Data ...

Tue Jun 04 2024 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The meeting focused on a potential member-authored peer-to-peer thought piece on what it means to be part of a data ...

Thu May 16 2024 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/wMF3MgXaC4Y

Dr. Nora Volkow, Director of the National Institute on Drug Abuse (NIDA) at NIH, joins us for the May 16 Fresh FAIR webinar. The webinar will highligh ...

Thu Apr 18 2024 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/bqpDAv448E0

This month’s Fresh FAIR webinar will highlight the transformative power of standardized metadata sharing, particularly variable-level metadata (VLMD), ...

Tue Apr 02 2024 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The HEAL Connections Team presented background on their Sharing Series, Cultural Responsiveness Researcher Guidebook ...

Thu Mar 21 2024 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/-ACiuFRoR8U

FAIR research publication advances reproducibility and data reuse for collaborative discovery and innovation, which is critical for the NIH HEAL Initi ...

Wed Mar 06 2024 11:00 AM - 12:00 PM Eastern Standard Time

Collective Board Meeting Summary: Members discussed challenges facing HEAL Data Ecosystem development on the study- and data-specific levels as well a ...

Wed Feb 07 2024 - UTC

The 5th Annual NIH HEAL Initiative® Scientific Meeting was held February 7-8, 2024. It included more than 800 participants from across the NIH HEAL In ...

Thu Jan 18 2024 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/E9HFJkdJipU

Contrary to popular belief, researchers working with intellectual property, at-risk populations, or other sensitive data types can still contribute to ...

Wed Jan 03 2024 11:00 AM - 12:00 PM Eastern Standard Time

Collective Board Meeting Summary: Breakout rooms with member pairs were used twice to give members a chance to get to know one another. Member pairs w ...

Tue Dec 05 2023 1:00 PM - 2:00 PM Eastern Standard Time

Collective Board Meeting Summary: Collective Board members shared ideas, success factors, opportunities and challenges associated with a potential HEA ...

Thu Nov 16 2023 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/a6o0hjbr0g4

Enabling collaborative, rapid advancements is the promise of open science. This kind of pivotal shift in research is particularly significant for the ...

Wed Nov 01 2023 10:00 AM - 11:00 AM Eastern Standard Time

Collective Board Meeting Summary: HEAL Stewards, HEAL Platform, and HEAL Connections collected ideas from members on ways to maximize our impact at th ...

Tue Oct 03 2023 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The Collective Board discussed challenges associated with standardizing CDE implementation across HEAL, and how best ...

Thu Sep 21 2023 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/r3gpfmsF-_c

This month, the NIH HEAL Initiative® is launching HEAL Semantic Search, a powerful additional search tool to complement the HEAL Data Platform’s free- ...

Wed Sep 06 2023 10:00 AM - 11:00 AM Eastern Standard Time

Collective Board Meeting Summary: Suparna Goswami presented HEAL Semantic Search, which is being launched at the Fresh FAIR webinar on Sep. 21. Gaurav ...

Tue Aug 01 2023 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The value of collecting variable-level metadata (VLMD) from HEAL studies was explored. Underlying the discussion was ...

Thu Jul 20 2023 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/t_CQemYr4sk

This month’s Fresh FAIR webinar features Anthony Juehne of the NIH HEAL Initiative® presenting best practices for research reproducibility and data re ...

Thu Jun 15 2023 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/lGByhT5i3is

This month’s Fresh FAIR webinar features Zixin Nie of the HEAL Data Stewardship Group (HEAL Stewards) providing a deeper look into data de-identificat ...

Tue Jun 06 2023 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The potential scope of a HEAL Working Group on data standards was discussed. Evaluating all of the standards that co ...

Thu May 18 2023 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/6VLbtjO4_wM

This month’s Fresh FAIR webinar features Sarah Myer of the HEAL Data Stewardship Group (HEAL Stewards) and Sara Volk de Garcia of the HEAL Data Platfo ...

Wed May 03 2023 10:00 AM - 11:00 AM Eastern Standard Time

Collective Board Meeting Summary: Discussion focused on the development of a data reuse use case for HEAL. Members shared detailed experiences of chal ...

Wed May 03 2023 10:00 AM - 11:00 AM Eastern Standard Time

Collective Board Meeting Summary: Discussion focused on the development of a data reuse use case for HEAL. Members shared detailed experiences of chal ...

Thu Apr 20 2023 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/DRah3gLmZjk

You asked, we listened! This month’s Fresh FAIR webinar features Mary Hannah Currin of the HEAL Data Stewardship Group diving into specifics and examp ...

Tue Apr 04 2023 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: After an introduction to and demonstration of HEAL Semantic Search powered by Dug, members were asked to respond to ...

Thu Mar 16 2023 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/iMfFIrF1Io4

This month’s Fresh FAIR webinar features Liezl Mae Fos of the HEAL Data Stewardship Group highlighting the most important takeaways from previous Fres ...

Wed Mar 01 2023 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: The Stewards presented a draft list of hurdles and limitations associated with sharing various types of sensitive HE ...

Tue Feb 21 2023 - UTC

The 4th Annual NIH HEAL Initiative Investigator Meeting was held February 21-22, 2023. It included more than 350 participants from across the HEAL Ini ...

Tue Feb 07 2023 1:00 PM - 2:00 PM Eastern Standard Time

Collective Board Meeting Summary: HEAL Connections presented their plans and responded to questions. Members shared insights on their varied dissemina ...

Thu Jan 19 2023 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/ssNlNF7Wsqk

Since its launch in 2018, the NIH HEAL Initiative® has grown significantly and now consists of 42 distinct programs funding over 1,000 studies. Each o ...

Wed Jan 04 2023 11:00 AM - 12:00 PM Eastern Standard Time

Collective Board Meeting Summary: The HEAL Connections Team was introduced to the board. Anthony and Phil presented the proposed approach to collectin ...

Wed Dec 07 2022 4:00 PM - 5:00 PM Eastern Standard Time

Recording Link: https://bit.ly/HEALPlatform_OfficeHours2022

HEAL Data Platform Study Registration Office Hours are venues for HEAL investigators to receive real-time, hands-on support registering studies on the ...

Tue Dec 06 2022 2:00 PM - 3:00 PM Eastern Standard Time

Collective Board Meeting Summary: Dr. Gregurick talked about key data sharing initiatives and strategies within the NIH. The HEAL initiative’s alignme ...

Thu Dec 01 2022 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/AVtgwrbxzpc

Effective January 25, 2023, the new NIH Data Management and Sharing Policy requires submission of a Data Management and Sharing Plan with any new or c ...

Fri Nov 18 2022 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://bit.ly/HEALPlatform_OfficeHours2022

HEAL Data Platform Study Registration Office Hours are venues for HEAL investigators to receive real-time, hands-on support registering studies on the ...

Thu Nov 10 2022 1:00 PM - 2:00 PM Eastern Standard Time

Meeting Summary: The Collective Board discussed HEAL CDEs in further detail. Updates were shared to clarify outstanding questions from the Sep. meetin ...

Thu Oct 27 2022 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://bit.ly/HEALPlatform_OfficeHours2022

HEAL Data Platform Study Registration Office Hours are venues for HEAL investigators to receive real-time, hands-on support registering studies on the ...

Thu Oct 20 2022 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/zvgN5154GPk

In July 2022, Dr. Rebecca Baker, Director of the NIH HEAL Initiative®, announced the official launch of the HEAL Data Platform, a secure, cloud-based ...

Thu Sep 29 2022 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/_xHJXExj6LU

The NIH HEAL Initiative® aims to connect and increase access to hundreds of pain, opioid use, addiction, and other related datasets through a centrali ...

Thu Sep 08 2022 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: Discussed the importance of achieving a greater degree of conformity for domain-specific CDEs and means of promoting ...

Tue Aug 09 2022 1:00 PM - 2:00 PM Eastern Standard Time

Collective Board Meeting Summary: Discussed concerns and recommendations for promoting Platform registration and opportunities for collaboration on th ...

Thu Jul 21 2022 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/l2oRKT07RFo

The NIH HEAL Initiative® is working to increase access to pain and opioid data through a centralized platform–this involves connecting hundreds of dat ...

Thu Jun 16 2022 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/s3k-OzfzP5Y

In this webinar, Stephen W. Erickson of the HEAL Data Stewardship Group will describe methods and approaches for de-identifying study subjects in acco ...

Thu Jun 09 2022 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: Members considered whether and under what conditions HEAL studies producing multiple data types should deposit their ...

Thu May 19 2022 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/ogfY3emV09Y

The NIH HEAL Initiative® aims to create a novel web platform connecting data from existing repositories to allow researchers to share, find, and analy ...

Tue May 10 2022 1:00 PM - 2:00 PM Eastern Standard Time

Collective Board Meeting Summary: Continued with four breakout groups to finish reviewing assigned categories and fields from the last meeting before ...

Thu Apr 14 2022 12:00 PM - 1:00 PM Eastern Standard Time

Collective Board Meeting Summary: Captured feedback from members on the 3rd annual HEAL PI meeting. Discussed the Translator program’s relevance to HE ...

Thu Mar 17 2022 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/RY1_N0-QENY

The NIH HEAL Initiative® aims to leverage its vast research portfolio, accompanying data, and research community to accelerate scientific discovery an ...

Thu Mar 10 2022 1:00 PM - 2:00 PM Eastern Standard Time

Collective Board Meeting Summary: The approaches of 1) beginning with study-level metadata and 2) scraping existing metadata from CT.gov, NIH reporter ...

Thu Feb 24 2022 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/u1KNR0D3SkI

The NIH HEAL Initiative® is building a community of researchers aiming to accelerate scientific discovery and develop solutions to address the nationa ...

Tue Feb 08 2022 2:00 PM - 3:00 PM Eastern Standard Time

Collective Board Meeting Summary: Discussed use cases to ensure the Board has a broad and collective understanding of the different customers for the ...

Thu Jan 20 2022 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/Fo4d4j2VMXQ

The NIH HEAL Initiative® Public Access and Data Sharing policy requires funded investigators to create a Public Access and Data Sharing plan describin ...

Thu Nov 18 2021 1:00 PM - 2:00 PM Eastern Standard Time

Recording Link: https://youtu.be/dt1Yhw0cDOo

The NIH HEAL Initiative℠ is on a mission to utilize its vast research portfolio to create science-backed solutions to pressing and worsening public he ...

Thu Oct 21 2021 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/Z3T_ERHaGHw

The NIH HEAL Initiative℠ Data Ecosystem aims to transform data, findings, and publications from a research portfolio of unparalleled depth and breadth ...

Thu Sep 16 2021 12:00 PM - 1:00 PM Eastern Standard Time

Recording Link: https://youtu.be/PwHjmHxVmqE

Making research data FAIR (findable, accessible, interoperable, and reusable) improves the scientific process, accelerates discovery, enriches the dom ...