Sharing Data in HEAL-compliant Repositories: Requirements and Guidance

Dr. Nora Volkow, Director of the National Institute on Drug Abuse (NIDA) at NIH, joins us for the May 16 Fresh FAIR webinar. The webinar will highlight the importance of sharing data by depositing into HEAL-compliant repositories and provide guidance and resources to help investigators through the process. Dr. Volkow will begin the webinar with a call-to-action for HEAL investigators to participate in the HEAL Data Ecosystem and deposit data into repositories, emphasizing the immediate and long-term benefits across the HEAL community. Next, HEAL Steward Allie Gartland-Gray will present an updated list of HEAL-compliant repositories, the new HEAL Repository Selection Quiz, and how the HEAL Stewards can help with repository selection. HEAL Platform team member Dr. Brienna Larrick will follow with an overview of how the HEAL Platform interacts with repositories to provide a central hub for searching across HEAL data. The presentations will be followed by a live Q&A.

Presenter Names and Bios:

• Nora D. Volkow, M.D., is Director of the National Institute on Drug Abuse (NIDA) at the National Institutes of Health. NIDA is the world’s largest funder of research on the health aspects of drug use and addiction. Dr. Volkow’s work has been instrumental in demonstrating that drug addiction is a brain disorder. As a research psychiatrist, Dr. Volkow pioneered the use of brain imaging to investigate how substance use affects brain functions. In particular, her studies have documented that changes in the dopamine system affect the functions of frontal brain regions involved with reward and self-control in addiction. She has also made important contributions to the neurobiology of obesity, ADHD, and aging.
• Allie Gartland-Gray, M.P.S., is a Research Data Analyst in the Research Computing Division at RTI International. She has experience in data collection, management, and storage, and has six years of experience working in the field of health informatics in a combination of both academic and professional settings. Her educational background is in biology and biomedical health and informatics, and she leverages this knowledge as a HEAL Steward to help develop tools and guidance for research data governance, curation, and deposition.
• Brienna Larrick, Ph.D., P.M.P., is a Senior Scientific Project Manager at the University of Chicago Center for Translational Data Science. With 8 years of scientific program and project management experience in the nonprofit and academic sectors, Dr. Larrick serves as Project Manager of the HEAL Data Platform. Her background is in preclinical research, focusing on cellular and animal models of metabolic chronic disease.

Tags: public, webinar, data sharing, FAIR data, FAIR, repositories, repository